Never give up searching for a cure………
Diagnosis is bad but God is still good.
The test results came back.
Our hearts are aching.
Sawyer was diagnosed with MPS 3: Sanfilippo Type A syndrome. This is an incurable rare genetic disorder. We spent countless hours, honest words, and shed many tears hoping this wouldn’t be the case with our little girl. It is Incomprehensible at this point.
Can I also apologize in advance? Many family members and friends are finding this news out on social media and I know that may seem offensive but please understand our hearts. We can’t bear to face each and every question and conversation we’d have to have face to face. We’re hoping by writing this out we can answer as many questions as possible. This is unknown territory for us and we are trying to wrap our heads around it.
We appreciate all the prayers, support, and love that’s been poured…
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